Friday, December 16, 2011

Tested Positive

Well, my phone alerted me earlier that my lab results came in. I had my mom read it for me... and I tested positive for the JC Virus... I guess, in the back of my head I was thinking that it was going to come back negative & I wouldn't have to think about the complications Tysabri could cause... but now that's sometime I have to take in to deep consideration. I'm of course, going to talk to my neuro about it.

I'm thinking that sense I've ONLY been on Avonex... that I'de like to try something else besides Tysabri first, unless my neuro thinks that my MS is too progressive for another drug besides Tysabri. I'de probably look into Copaxone, if I do have the choice. I've heard wonderful things about Copaxone... even though I know it's every day, at least I wouldn't have the change of contracting PML.

Ugh, this feels like being diagnosed all over again, except for the fact that my diagnosing neuro didn't really tell me my options of medication... he just handed me the intro packet to Avonex. So, I guess it's time to really do some research and look at my options.

On another note, Jason (my oldest son) is sick.... and now I'm not feeling well.. It's like GREATTT I'm not on Avonex... so I guess I can just hope and pray that I don't have yet ANOTHER relapse. Because that would just plain suck.

On a GOOD note, tomorrow is my 6 year wedding anniversary, so I don't know what we're doing exactly... but James has something planned up his sleeve. I've been in a lot of pain lately, I don't know if it's cause of the weather change we just had or what, but I feel like crap. Good thing is, I got almost all of the Christmas presents wrapped/bagged. Now I just have to remember what I did with a gift card I bough... cause I can't find it anywhere... Stupid MS. I probably put it somewhere, where I wouldn't forget it... UGH!

Well, I'm gonna go hang out w/ James by the fire :)

xoxoxo
Ashley

4 comments:

  1. I hope things start looking up for you soon. Thanks for sharing and inspiring all of us with MS.

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  2. Damn, girl!!!! I haven't heard anything on mine yet. You just can't seem to catch a break! Love you sweetie, you will persevere!!! I know it!

    Becky

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  3. I WAS ON TY FOR 2 YEARS AND LOVEDDDDDDDD IT ..!!!! I'VE POSTED ALOT ON MS WORLD,MESSAGE&CHAT..... I ALSO TESTED POSITIVE, THEN AFTER 3 EPISODES ON IT... DECIDED TO STOP... YOU SHOULDN'T HAVE ANY EPISODES.. I AM IMMUNE TO IT... ALSO ALLERGIC TO REBIF..... ALSO HAVE A BLOODCLOTING DISORDER AND IMMUNE TO CUMADIN SO HAVE TO TAKE SHOTS IN BELLY EVERYDAY....SO,,, I ALWAYS REFER TO MYSELF AS HAVEING "ALIEN BLOOD".. MY TWIN HAS MS BUT IS MOSTLY OK... WORKING 7 FINE... OUR MS SPECIALIST CALLS ME 'THE BROKEN TWIN' LOL LOL LOL HAPPY ANNIVERSARY SWEETY !!! AND, HOPE YOU FEEL WELL ENOUGH TO ENJOY WHATEVER YOUR SURPRISE IS !!!!!!
    luv-N-hugs jessilee

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  4. Hope you feel better. I was just dx in June 2011. I was on copaxone for only 3mths I had 2 relapses. I just got signed up for tysabri waiting on my blood work 2 come back for the JC virus. Like ur blog.

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