I had the LONGEST day ever yesterday! I left the house at 9:15 and didn't get back home to actually sit down till a little after 4! I did go to Walk Aide yesterday... and tried out their device. I didn't really realize how weak and how bad my foot drop was on my right foot. The lady told me that the nerve that the "electrodes" had to go on were normally in this certain spot, as she pointed to it... I warned her that I wasn't text book. What do you know, I wasn't. My nerve was like in the bend of my knee on the back... So we go the device set up and I walked with it! I didn't realize how much I was actually dragging my foot till the device actually picked up my foot, like it's supposed to normally function. If you don't know about Walk Aide, click here. I didn't know that over 60% of the people using the device, have MS.
So after that was all done, I went to the grocery store... I started off by pushing a basket, but ended up needing assistance and getting a scooter. I didn't tell anybody this, by the way. One of the girls that knows me that works there, knew I wasn't doing good and pretty much forced me in to the scooter lol Gotta love the people at my local grocery store. They just know me from shopping there and they are so kind and know me by name & know about my condition.
Needless to say when I finally got home, I was exhausted. Even with my fatigue medicine.... I just wanted to sleep. I actually didn't even hear my alarm go off this morning. I don't know if I don't hear my alarm because I'm so fatigued... or because of my loss of hearing, or both. Anyway, back to the whole gait thing... My mom helped me read my medical records, and it said that my gait is "wide and exaggerated", I don't really know what that means, but I know that my gait isn't "normal".
I was going to go to the gym today, but they didn't have my reservation right for the day care... and I'm experiencing major foot dragging this morning. So I think I'm just going to take it easy today. I was going to try and clean the house & do laundry.... but I don't think James is going to let me try. I feel bad that he just got home from working a 24 hr shift and now has to do the things, I'm supposed to be doing. It makes me feel like I'm "lazy" and not holding up my job as a house wife... but what can you do, when your body holds you back from doing things...
Yesterday though I did do something that is going to help out a lot... I signed up for automatic bill pay on the majority of our bills... so that's something I don't have to worry about doing and/or remembering. It's kind of like a weight lifted from my shoulders... and I don't have to worry about people calling saying the bills aren't paid.
James is supposed to take me to a Basketball game tonight, hopefully I can make it. I really don't like using any kind of assistive device out side of the house because I get aggravated when people stare at me. Again, that's when you need a slap a stupid button. I want to make/get a shirt that says "take a picture of my disability, it lasts longer" or something along those lines... maybe I'll put it in the MSWorld CafePress Store..? What do y'all think?
I'm hoping that since Luke is home today cause he doesn't have mothers-day-out that he will take a nap so I can take a nap as well. Again, even with taking my fatigue medicine... I'm exhausted. It's not just the "tired" feeling though, it's like my body is tired as well. I keep yawning and not even coffee is helping right now. I guess I'm just going to lay around the house today and hopefully this rest will make sure I'm feeling better tomorrow... so that I can do my house wife duties, or attempt it lol
Since I was too tired to blog yesterday, I did write a poem... if you want to check it out, click here.
For those that are reading this, I really hope you are a member of MSWorld.org because that has been my support group through this journey... and I know that it helps so many others living with MS... even caregivers.
Well, I'm gonna go lay down, everyone take care and have a good EASY weekend.
Lazy Song By Bruno Mars