Well, tomorrow at 11 I go to my neuro's office to talk about Tysabri -- and if I agree to it, then we will plan my first infusion. I'm pretty dead set on doing Tysabri... I've done a lot of research... and being JCV negative.... I really don't have any worries about it. So about the mess up w/ the tests... they ran it wrong the first time & that's the results I was sent to my phone. My neuro called the lab and had them run it the RIGHT way, not once but twice... and it came back negative.
I'm just a bit worried for the fact that I'm not on any medication right now... and I'm sick. So I know my immune system is firing up trying to fight off whatever it is that I have. If I don't feel better by tomorrow I'm going to call my PCP and schedule a appointment cause I can't be sick, especially at Christmas. I laid around a lot yesterday & today because my body just doesn't want to move right now... not only from me being sick... but because of the constant weather change we are having here in Texas.
I went to the store the other day & I used my handicapped parking pass because I was having a really tough time walking & again I get snide comments about me using my "grandmas parking pass".... like really, I don't use it unless I absolutely need it... and whenever I do use it, I get snide comments! Give me a freaking break already... Just because I'm young -- doesn't always mean I'm in perfect health, morons.
I've been keeping my mind off of everything lately with the volunteering I do with MSWorld... but I still can't ignore everything that is going on w/ me right now. I'm looking forward to Christmas though... James and I have everything wrapped (he had to do a lot of the wrapping, cause my hands wouldn't let me) God love him!
James is taking me to my neuro appointment in the morning & then we are going to the store to get me some feel good food lol. Yesterday was a tough day at the house... it was the 4 yr anniversary of my mother-in-law passing away. It's so hard... I miss her so much.
Oh, I didn't go my urologist appointment yesterday -- I have to reschedule, because I could barely even move I felt so bad. So, I will be calling tomorrow to re-schedule that appointment. I really wish I could of gone, but what can ya do... when you can't move, you can't move.
I feel like a crappy mom -- my kids have been living off of take-out lately because I can't get up to make them something to eat. This being sick thing is draining me and making things even harder than they were before I was sick. But this too, shall pass.
Well, I'm going to call it an early night, I will update everyone tomorrow about my appointment w/ my neuro.